Network Design Team Member (2018 - 2020)

Co-Founder | Single Ventricle Patient Day (2018)

Patient Lead | Community Building and Engagement (2020 - 2024)

Co-Chair | Community Building and Engagement (2024 - current)

Member | Board of Directors (2025 - 2027)

Director | Patient Engagement (2021 - current)

Member | Patient and Family Advisory Group (2022 - current)

Member | Patient Centricity Board (2023 - current)

Speaker and Panelist | Congressional Briefing: Priority Review Voucher (PRV) Program (2025)

Patient Engagement | Advanced Advocacy Academy (A3) (2023 - 2025)

Speaker | “Roadmap Project” | Grand Rounds (2025)

Member | Patient and Family Advisory Committee (2022 - 2023)

Speaker | Stanford Single Ventricle Scientific Summit (2019)

Speaker | “Roadmap Project” | Grand Rounds (2024)

Speaker | Champions Program (2011 - 2013)

Member | Patient and Family Advisory Committee (2011- 2012)

Patient Testimonial | AHA Pre-Scientific Sessions Symposia (2024)

Speaking Engagement (2024)

Faculty Speaker | Cardiology (CHOP Conference) (2015, 2024)

Faculty Speaker | 8th World Congress of Pediatric Cardiology and Cardiac Surgery (2023)

Scientific Poster - General Cardiology | “The Fontan Outcomes Network’s Single Ventricle Patient Day: Engagement, Empowerment, and Education” (2023)

Consulting | Biopharmaceutical Market Research (2021)

Featured Story | The Heart Within Documentary (2019)

Speaker | Fontan Family Education Day (2019)

Project Management & Technical Services | Pharmaceutical Manufacturing (2017 - 2019)

Faculty Speaker | “Maintaining Mental Health with Difficult Diseases: Lessons for Patients and Providers” | Frontiers in Fontan Failure: Innovation and Improving Outcomes (2017)

Learning Session Speaking Engagements (2011 - 2017)

Featured Story (2014)

Link to “Extra Minutes” interview

Global Ambassador (2013)